Transplant Athlete
Monday, April 06, 2009
  You Don't tug on Superman's Cape

I received the following email recently in response to my post about firing my Nephrologist:
i am a semi regular reader of your blog, a former dialyses patient and a transplant recipient and an avid cyclist (2000+ miles/year). i really respect your accomplishments as a transplant recipient but you are a terrible dialyses patient. it looks like you are argumentative with the dialyses staff and confrontational with your doctor. an excellent way to always recieve lousy healthcare. this also would make you the guy no one at a dialyses unit is happy to have around. you may want to look at what kind of a patient you are being...you get what you give.



In 37 years I've learned a few things.

  1. You don't pull the mask off the old lone ranger
  2. If you can dodge a wrench, you can dodge a ball
  3. The Force will be with you, always
  4. If somebody asks you if you are a god, you say yes
  5. Never, no matter how much you want to, play GLOBAL THERMONUCLEAR WAR with Joshua
  6. Don't feed gremlins after midnight, don't get them wet, and avoid bright lights
  8. Nobody Puts baby in a corner
  9. There can be only one
  10. AND NEVER piss off the person sticking you with very large needles.

I may sound like I complain at dialysis but I don't. I'm a model patient. I occasionally complain about dialysis and I do it here. I think the lesson here is that you have to be vigilant about your care. You can't just go on autopilot and hope to get good care just because you're NOT rocking the boat. I've always asked a lot of questions regarding my treatment, whether it was regarding my transplant or dialysis. Good doctors are happy to answer questions.

My mother, a nurse, pointed out that too much potassium could have killed me. My wife, who does not want to be left alone raising 3 kids, pointed out that with my blood pressure that high, I could have had a serious stroke. I think most people under the same circumstances would be a bit confrontational with the doctor that caused those problems (and failed to correct them) and would not give them a second chance.


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This is a note to Chuck, I'm Lous Mom and his kidney donor in 2000. I have never seen him as sick as he was 3 weeks ago. With nothing being done to help him, no change in his medications except for blood pressure.I am a nurse and I have never heard of a tech just putting a k-bag on a pt without checking the chart. It was a good thing he did because that night when he came home he was starting to get back to functioning and felt better.I know that the quiet pt. gets better care but in this instance Lou was right. My son has always been brave & courageous about his disease.You are wrong about this.He has been dealing with this disease since he was 14 years old,he is not a complainer. In this instance he may have saved his life. Lou's Mom
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I've gone through kidney failure twice. The first time in 2000, my mother donated a kidney; and again in 2008, I'm on dialysis waiting for a breakthrough in immuno-suppression medicines before seeking a new kidney.

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Warning Signs for Kidney Disease:

  • High Blood Pressure
  • Burning or Difficulty when Urinating
  • Frequent Urination at Night
  • Blood in your urine
  • Cola or tea colored urine
  • Swellig of the eyes, ankles, or feet
  • Lower back pain unrelated to physical activity

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