Transplant Athlete
Thursday, August 28, 2008
  Inova Fairfax Day One

As I was waiting to sign in to the hospital, a middle aged woman walked in to the registration area carrying a takeout tray of food. She had signed in before me, and then had walked off for food. When her turn came to meet with the admitting person, she started whining like a child. She had been there from 10 to 6 yesterday waiting for a bed. The "chinese" doctor who had admitted her was no longer there and was no longer her doctor, she was hungry and had left for food. She was very nearly crying. The admitting person calmly asked questions and determined that she had a bed and had left her room (I'm guessing from the psych ward). The crazy lady walked out of the office and then started to tell me her life story, beginning with her day yesterday; by the way, did I want her food because she had barely touched it; and all she really needed was a beer (did I mention it was 8:15 am?). She then wandered off and was soon chased down by the admitting person and a supervisor.

I was starving and had asked for a breakfast tray as soon as I got to the room. I met with my Nephro, then I ate and was immediately taken up to dialysis. My Nephro met me again at the dialysis clinic, it was a good thing too, I was really nervous and it was very reassuring having him there.

It's one thing to visit a dialysis clinic or to read about the process, it's quite another to actually be wheeled in to a room full of machines that are whirling, pumping and beeping away. The staff go about their work in a serious fashion, but they make light hearted conversation to diffuse the tension. They explain every step of the way to reassure and calm me.

Across from me is an old man who looks like he's dying. Along with dialysis, he's got an IV and what appears to be a feeding tube; he alternates occasional convulsions with low moans. His mouth is wide open and his eyes are shut tight. Next to him is a younger man (still older than me) who also appears out of it. His eyes are open, but often they roll up into his head and all I can see are the whites of his eyes. Physically, his body looks healthy, but he moves less than the old man and seems just as near death. I secretly want to ask my Nephro if I'm staring at my future.

The nurse hands me a needle and tells me it's the smallest they use. It looks three times larger in diameter than any needle I've ever been stuck with and about twice as long. They keep telling me how much its going to hurt. They give me a shot of lidocaine to numb the area first. One of the staff recommends against the lidocaine, because I won't get it later, and he thinks its better not to get used to it. The nurse gently tries to insert the huge orange needle into my new fistula, but she immediately has a problem. The walls of my vein aren't strong enough yet. I'm grinding my teeth trying to will the pain into submission. It's not working and long after the needle has been removed, I'm still in pain.

Since the fistula isn't ready, I must get a permacatheter placed in my chest for access, unfortunately, since I had breakfast, they won't be able to do the surgery until my stomach has had a chance to clear. The Interventional Radiology department wants to do the surgery tomorrow or the day after, but my Nephro won't be able to justify the extra days to the insurance company, so it has to happen today, IR relents and schedules me for 5pm.

I'll be missing lunch, but I should be able to get dinner. I'm wheeled down to IR Pre-Op just before 4pm, so I'm thinking maybe they'll get me in and out quicker, but no such luck. I fall asleep waiting to get moved into an Operating room. I'm wheeled into an operating room well after 5pm. They take my necklace and my glasses, shave my chest, and give me Oxygen and possibly something else. It appears that they are giving me a little bit of Anesthesia, checking my state, then giving me more, so I try to stay coherent as long as possible, in the hopes they will really knock me out. There's nothing. Then I feel needle sticks. More nothing, then I feel the painful incisions. More nothing. Then pressure as the catheter gets placed. It feels rough and painful, but once it stops I've fallen back into nothingness. I spend the next hour trying to shake the groggy feeling.

I was able to get dinner, which is a good thing, I don't do well on an empty stomach, but the portions weren't as filling as I'd like. A couple hours later, I was hungry again and had the nurse bring me some snacks.

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I've gone through kidney failure twice. The first time in 2000, my mother donated a kidney; and again in 2008, I'm on dialysis waiting for a breakthrough in immuno-suppression medicines before seeking a new kidney.

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Warning Signs for Kidney Disease:

  • High Blood Pressure
  • Burning or Difficulty when Urinating
  • Frequent Urination at Night
  • Blood in your urine
  • Cola or tea colored urine
  • Swellig of the eyes, ankles, or feet
  • Lower back pain unrelated to physical activity

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